Friday, 8 April 2011

In the words of my partner......

well what a complete waste of time bournemouth A&E were last night ... in nearly 3 and a half hours all we saw was a so called nurse who failed miserably when trying to take blood from Hannah and then walked off when Hannah fainted , leaving me to bring her round ..... Then another nurse who when Hannah said she wanted to go home advised us to go to Southampton A&E as they know what they are doing over there due to the big neurology centre ..... Really does fill you with confidence with regards to Bournemouth hospital ......NOT !!!!!!!!

Thursday, 7 April 2011

What a day...

Well couldn't get up before little guy so was most the morning in my bed him sat next to me watching cbeebies and munching, that way i still know what he up too. Finally go out the 'pit' and ended up going straight down the park with him and the dog cause if i knew i stay in he would bug and i'd up getting stressy making my head worse. So down we were other half collect us (after what turned in to a ok morning) around lunch time and off out we went. Saw the father in law and sat in his garden but didn't last too long i got way to hot and was sweating like a bitch which only started happening in last few days. Any way got home i managed a burger i know not very healthy with me trying to diet but it what every one else was having and quicker to cook all than different things.

This afternoon my head gotten worse and partner called my neuro/c and he said if i'm not imporving in next 24 hours then it trip to a&e for me doesn't matter which one haha it bloody does cause if i go to one they one do anything for me but the other will take me in and help me.

So i'm now pondering around, sorting out bits of washing for me and my little boy in case I do head that way.

Wednesday, 6 April 2011

My story

Well i was diagnosed in December 2005 after doctors believing i had meningitis. I was sent for test's and brain scans and last was my first lumber puncture. This would be the first of many that i cried and sworn at doctors, I'm not easy to preform on. Any way after this was dun the next day i was to learn that i had the condition intracranial hypertension. Thought's were never heard of it please explain.... basically i produce too much csf fluid and my body isn't able to drain it away and thus causing a build up around the brain and causing many problems.

I went home and was waiting to see my neuro consultant and the day we met he said i would never have it again it was just a one time thing. How wrong was he to turn out, I was back in again i couldn't say how long after and had to have my pressure drained once again. After seeing the consultant again he swore it was just a blip and would go away. Over the years it came once or twice and I had my little boy in 2007 with no problems and things were going great.

That was till we hit 2010 things got really bad, i was in and out hospital and being lumbered every 2-3 mnths i been put on many different drugs by now to help and finally my consultant said that i was a problem case. start of 2011 and i was having lumbers 2-3 weeks apart and finally got the news i wanted to hear, I would be refered to a different specialist and talks of a shunt have been in place i'm just hoping that they will do it and i can try see if this help's.

Life has become hard and i'm missing out days with my boy all because my head and this condition. I write this to tell my story and how thou I may look normal each day to the outside world there is a troubling and difficult condition to live with inside the person I am.

Day one.....

Feeling bit apprehensive about trying to lose weight as I been trying for 4 years with only success of a up and down weight. Thou i'm not at my heaviest since losing 3 dress sizes my iih has got worse and in my theory will be proving the doctors wrong that iih is linked weight issues. I'll just be another to add to the statistics list but in my self i will have known that I've tried to help myself.