Another long weekend in hospitals

Sigh... so just got home this afternoon after being admitted Friday with stomach discomfort and a really sore head more so in the area were they performed my surgery. Well Bournemouth didn't exactly know what to do so under the advice of Southampton they did blood and urine tests to check for infection apparently one came back with mild infection but nothing was ever said about this again. I was then taken to ct were i had my brain scan no idea how that came out. At 4am was rudely woken to go down for x-ray i assume to see placement of my shunt thou they didn't take a picture of the whole thing.
 Next  day they performed a lumber puncture ok i thought can do this got bit sedation and had so many b4 knew what was coming omg how wrong was i! The stupid doctor left her stethoscope round her neck and course lent in to drain my fluid and hit the needle in my back! needless to say i screamed and after that cried my eyes out for the rest of the drain which then had to b4 performed a second time as we believe the first one either lost place or clotted either way it had to be done. So that was that a opening pressure of 44 with a vp shunt in.. (not a good thing) So Sunday evening i was moved over to Southampton hospital were they could do future investigation. upon arriving they first thought my stomach pain could have been appendicitis so had to wait for a surgeon to come see me about that. More x-rays were done of the whole shunt and i got to see it, It looks really cool lol.
  Monday i felt like shit my head hurt and felt sick as a dog so i didn't do much was back on iv fluids to get sum in me. Tuesday woken up and i'm feeling ok, sore back still from the lp but after doctors and surgeons talking to me back and forth it has been decided that we shall see how i am in 2 weeks, as they can not use the opening pressure from my lumber at Bournemouth all because i was sat up! Wish i known that!! And all so due to having had 20ml drained off my pressure might not be at its highest peek yet. So in 2 weeks am to go back see how things go and then decide if i have another lp done then to check if the shunt really is working for me.

In the words of my partner......

well what a complete waste of time bournemouth A&E were last night ... in nearly 3 and a half hours all we saw was a so called nurse who failed miserably when trying to take blood from Hannah and then walked off when Hannah fainted , leaving me to bring her round ..... Then another nurse who when Hannah said she wanted to go home advised us to go to Southampton A&E as they know what they are doing over there due to the big neurology centre ..... Really does fill you with confidence with regards to Bournemouth hospital ......NOT !!!!!!!!

What a day...

Well couldn't get up before little guy so was most the morning in my bed him sat next to me watching cbeebies and munching, that way i still know what he up too. Finally go out the 'pit' and ended up going straight down the park with him and the dog cause if i knew i stay in he would bug and i'd up getting stressy making my head worse. So down we were other half collect us (after what turned in to a ok morning) around lunch time and off out we went. Saw the father in law and sat in his garden but didn't last too long i got way to hot and was sweating like a bitch which only started happening in last few days. Any way got home i managed a burger i know not very healthy with me trying to diet but it what every one else was having and quicker to cook all than different things.

This afternoon my head gotten worse and partner called my neuro/c and he said if i'm not imporving in next 24 hours then it trip to a&e for me doesn't matter which one haha it bloody does cause if i go to one they one do anything for me but the other will take me in and help me.

So i'm now pondering around, sorting out bits of washing for me and my little boy in case I do head that way.

My story

Well i was diagnosed in December 2005 after doctors believing i had meningitis. I was sent for test's and brain scans and last was my first lumber puncture. This would be the first of many that i cried and sworn at doctors, I'm not easy to preform on. Any way after this was dun the next day i was to learn that i had the condition intracranial hypertension. Thought's were never heard of it please explain.... basically i produce too much csf fluid and my body isn't able to drain it away and thus causing a build up around the brain and causing many problems.

I went home and was waiting to see my neuro consultant and the day we met he said i would never have it again it was just a one time thing. How wrong was he to turn out, I was back in again i couldn't say how long after and had to have my pressure drained once again. After seeing the consultant again he swore it was just a blip and would go away. Over the years it came once or twice and I had my little boy in 2007 with no problems and things were going great.

That was till we hit 2010 things got really bad, i was in and out hospital and being lumbered every 2-3 mnths i been put on many different drugs by now to help and finally my consultant said that i was a problem case. start of 2011 and i was having lumbers 2-3 weeks apart and finally got the news i wanted to hear, I would be refered to a different specialist and talks of a shunt have been in place i'm just hoping that they will do it and i can try see if this help's.

Life has become hard and i'm missing out days with my boy all because my head and this condition. I write this to tell my story and how thou I may look normal each day to the outside world there is a troubling and difficult condition to live with inside the person I am.

Day one.....

Feeling bit apprehensive about trying to lose weight as I been trying for 4 years with only success of a up and down weight. Thou i'm not at my heaviest since losing 3 dress sizes my iih has got worse and in my theory will be proving the doctors wrong that iih is linked weight issues. I'll just be another to add to the statistics list but in my self i will have known that I've tried to help myself.